Monday 11 July 2011

An update on Jack Health 11/07/2011


Good Evening #jacksarmy How are you all? I saw 5am with Jack this morning. He seemed wide awake we said nothing to each other except for a couple of quiet "I love yous" I watched him go back to sleep. This morning I got up and ran a bath for him, I changed his dressing, He loves his bath! Seemed to be much brighter, I fed him some Tangerines which he enjoyed, got him dressed into his footie kit given to us by Craig and clare. Thought he was doing really well, but alas midday started to get sleepy again. Outreach nurse came today not seen her for a couple of weeks so had a good catch up and replenishment of stock! The consultant has now been consulted and the outcome of Jacks tiredness appears to be a combination of things a busy couple of weeks, general anaesthetic,higher dose of two medications, but also the ever spreading disease through his spine and brain as the cells double more and more, the consultant as we know did say from the last scan he would of expected Jack to be more symptomatic! And one of the many tumours Jack has has started to grow near the hole which they put in his 3rd ventricle, to realieve fluid, so there is a potential blockage eventually! We are not sure if he is seeing properly and is becoming more stiff, using his right arm less and less! Steroids have been mentioned but they want to use them when Jack has more accute symptoms, I know!! So for now we are sitting tight(er) please keep up the #jacksarmy spirit of support as I am still reading tweets to Jack like I have done throughout! Thank you x

10 comments:

  1. You are a very brave little man I pray for you to get better and have the treatment you deserve xx

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  2. Get well soon Jackie boy! You are indeed a brave example to many adults out there!!! Love u.

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  3. You are amazing Jack, a real inspiration to everyone everywhere - I love seeing the pics of you and your Mummy hsving those precious precious cuddles and wish you all the love in the world - keeping you in my prayers xxxx

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  4. Keep going strong Jack, best thoughts for ya mate ! xx

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  5. Keep strong, you are all in my thoughts and prayers.

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  6. Keep waiting on hearing that jack is gonna be or there's new treatment to try , he's been fighting so long surely not in vain defying the odds showing the Drs they're wrong! I love this little boy and have necer met him but Hes constantly in my mind and thoughts x he's made such an impact on me x

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  7. Stay strong, little man. You're in my thoughts.

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  8. My thoughts and prayers are with you everyday Jack since I first came across your foundation.

    To Tracey and all of the Marshall family. You're so brave and an inspiration of unity and strength in family. Keep strong and enjoy every moment. Love from Gavin. Dublin, Ireland.

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  9. Thank you all for your kind words Nomigippy, i hope everyday they get some miracle treatment, but I am sure this will not happen! As for proving the doctors wrong he has done this every single day :0) after March 23rd when we came home having been told the devastating news he would go that weekend! I felt that along the way Jack has aquired admirers and that one way people would never forget him was to share him, and in doing so he has raised Brain Tumour awareness unlike "I" have ever seen! Thank you all again for you support
    Tracey, Jacks mum

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  10. You are such a brave little man you always make me smile when i see you lovely little face keep strong. xxx ;-)

    Tracy you have too lovely boys havin two boys myself 10 and 5 i cant imagine how hard everyday life is for you and your family you are all so brave From me and my family keep strong keep them lovly smiles up and lets all hope for some realy good news soon.xxx

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