1. Brain Tumours KILL more children and adults (under 40) than ANY other cancer.
2. 16,000 men, women and children are diagnosed with a Brain Tumour every year.
3. In the UK the 5yr survival rate for Brain Tumours are only 14 per cent compared to 50 per cent for other cancers.
4. Of the £420m per year spent on cancer research, less than 1 per cent is spent on Brain Tumour research.
5. Much of the money raised by volunteers for the larger cancer charities is spent on “senior exec” salaries, real estate, PR, marketing and advertising.
6. Results based funding has driven some cancer charities to research cancers which are already treatable rather than “risk” researching difficult cancers such as Brain Tumours.
7. Cancer Research UK’s CEO earned in excess of £250,000 in 2008/9.
8. The UK’s Brain Tumour detection and diagnosis rate trails way behind that of America. (Who’s medical care is business driven (privately insured) where money is no object and imaging equipment is available in almost every hospital)
9. Early detection and diagnosis is currently the most effective way to improve Brain Tumour treatment and survival. MRI is the best way to detect a tumour whilst it is small. A small tumour that hasn’t spread is much easier for the doctors to treat.
10. If you are raising money because you have been affected by a Brain Tumour and wish to fund research to help others, choose your charity carefully. Unless you choose a charity which specifically funds research into Brain Tumours (such as http:www.braintumourresearch.org or http://www.braintumourtrust.co.uk to name a couple) more than 98 per cent of the money you raise will be spent elsewhere, rather than being spent on Brain Tumours.
(Source: jacksfund.co.uk)
Sunday 12 June 2011
Saturday 11 June 2011
Why I want Jack to trend on Twitter #jackmarshall & why #ff is Important
I have thought so hard to think of a way to make Jack trend because to us Jacks family making Jack trend means raising brain tumour awareness, that has always been very important to us throughout Jacks illness. What do I say about Jack in a short hashtag moment? There are not enough words to express why I want Jack to trend worldwide. My son Jack 5 was brought home terminally ill with brain/spine cancer a couple of months ago, we were told that weekend it would happen, but some months down the line he still smiles every day and every morning I ask him “how ya feeling hon” He says “fine…….Mum…Guess what? I love you” it may be 64 kisses or 184, Who knows, but every single day, several times a day he says “I love you” to one of us! Everyday we get our strength from Jack, we continue through this uncertain time we face (the length of which we do not know) with smiles laughter and love because of Jack! And people have been inspired to do Great things because of Jack! Quite simply Jack Marshall is full of love, fun, laughter, caring, thoughtfulness, charming, warrior, dedicated, amazing, strong, brave, determined, unforgettable, gorgeous, smiles, understanding, tolerance, My hero, Inspirational, and raising brain tumour awareness, raising awareness means early diagnosis = saving lives. This is why I want to dedicate this hashtag to Jack #jackmarshall and hope that you can pass it on as to why! And not only that to tell him that everyone on Twitter is talking about him will add another smile to this already smilers face, and to us that is priceless!! thank you Good Luck for The weekend Tracey, Jacks mum and Jack http://t.co/bqpEqK1
http://www.jacksfund.co.uk
Thursday 9 June 2011
Recently watching Jack work his magic
I sat the other morning and watched three grown nurses stand at the bottom of Jacks bed (in the living room) hanging on his every word, giggling like school girls as he talked to them. Flashing his eyebrows and winking at them! That's Jack the charmer I have been in hospital with Jack when he has told nurses that they "are beautiful" and "his best girl"
Last night I got into bed at 1am, and while still very sleep Jack grabbed my hand and kissed it!
Jacks health is stable at this time but that doesn't mean for him/us things won't change horribly quickly if medicines are needed to be given.
But for now..... we Still have the pleasure of Jacks smiles and humour and utter bravery every single day! And the honour of spending these precious days with him!
Which could be days, weeks or months?.......
An update on my amazing Jack 20/05/2011
Here's and update! We had Jacks consultant come to the house yesterday to see Jack, not quite what we had foreseen after being told that news all those weeks ago!
He wasnt walked a lot since we came home from hospital, without support. He did however with lots of help a few weeks ago stand in the hallway and kick a ball. But his legs have stopped working over the last week or two.....
Jacks health however is stable the steroids have worked there magic and he is enjoying every single day and so are we, with laughter, joy, fun, dvd's, marshmallows, milky bars (cringe, diet) but, Hey! He's still eating for the first time in 19 months consistently!And we laugh every single day!!
Tracey, Jacks mum x
Website: http://www.jacksfund.co.uk
Tumbler: http://jmbtf.tumblr.com/
Twitter @Jack_Marshall_ - raising awareness
Facebook Jack Marshall Brain Tumour Fund - raising awareness
He wasnt walked a lot since we came home from hospital, without support. He did however with lots of help a few weeks ago stand in the hallway and kick a ball. But his legs have stopped working over the last week or two.....
Jacks health however is stable the steroids have worked there magic and he is enjoying every single day and so are we, with laughter, joy, fun, dvd's, marshmallows, milky bars (cringe, diet) but, Hey! He's still eating for the first time in 19 months consistently!And we laugh every single day!!
Tracey, Jacks mum x
Website: http://www.jacksfund.co.uk
Tumbler: http://jmbtf.tumblr.com/
Twitter @Jack_Marshall_ - raising awareness
Facebook Jack Marshall Brain Tumour Fund - raising awareness
23rd March 2011 The Devastating news...
It is with great sorrow and much sadness to inform you that on Wednesday the 23rd March 2011 Craig and I, were give the devastating news that Jacks cancer had come back. There are lesions over his brain and the cancer cells have spread down his spine (leaving him for the 4th time in his short life unable to walk). Joshua, Jacks brother has been told (we have never kept anything from him) and he is equally devastated. We are very proud of both our sons, and the way they have both dealt with Jacks illness, we have a great network of family and friends, with whom we are eternally grateful for their support and friendship throughout Jacks illness and undoubtedly afterwards.
My heart breaks in two, but also bursts with pride as I think of how many peoples hearts Jack has touched and won with his continued smiles, laughter, strength, courage, bravery and dignity, through his illness and it is that which has helped us make the hardest and most difficult decision we have ever had to make, yet we know it’s the right decision.
On Thursday 24th March 2011 we brought Jack home for the last time, to be in familiar surroundings.
As I write this I look upon Jack who is sleeping peacefully and comfortable at this moment in time and we hope that this continues, we have been told weeks, but as the hours go by this looks more like it will be days. Over the last couple of days we have seen small glimmers of Jack, for example at 6am this morning Craig (Jacks dad), myself (Jacks mum) and nanny were sat around him he said, “guess what?” “I love my nanny, and I love my dad and I love all my family and all my friends…..” and fell back to sleep.
Just yesterday morning when he had not said anything for hours or opened his eyes, he started singing “Glory Glory Man United, Glory glory………..” Well there wasn't a dry eye in the house and last night he came out with his all time classic, With clenched fist and a tiny smile he said “dya wanna piece of me?”
These moments are becoming fewer and will continue to do so into the next phase. They will be followed by a coma and then, well I don’t need to say……………………
My heart breaks in two, but also bursts with pride as I think of how many peoples hearts Jack has touched and won with his continued smiles, laughter, strength, courage, bravery and dignity, through his illness and it is that which has helped us make the hardest and most difficult decision we have ever had to make, yet we know it’s the right decision.
On Thursday 24th March 2011 we brought Jack home for the last time, to be in familiar surroundings.
As I write this I look upon Jack who is sleeping peacefully and comfortable at this moment in time and we hope that this continues, we have been told weeks, but as the hours go by this looks more like it will be days. Over the last couple of days we have seen small glimmers of Jack, for example at 6am this morning Craig (Jacks dad), myself (Jacks mum) and nanny were sat around him he said, “guess what?” “I love my nanny, and I love my dad and I love all my family and all my friends…..” and fell back to sleep.
Just yesterday morning when he had not said anything for hours or opened his eyes, he started singing “Glory Glory Man United, Glory glory………..” Well there wasn't a dry eye in the house and last night he came out with his all time classic, With clenched fist and a tiny smile he said “dya wanna piece of me?”
These moments are becoming fewer and will continue to do so into the next phase. They will be followed by a coma and then, well I don’t need to say……………………
Jack Marshall Brain Tumour Fund
Jack Marshall is 5 years old. He is a fun, caring boy with a fantastic sense of humour, who loves his friends and family very much. Three weeks after starting reception year at school he became ill.
Jack was four years old when he was diagnosed with a brain tumour at the end of October 2009. He was just one of the 450 children in the UK who are diagnosed with a brain tumour every year. Jack’s condition was confirmed quite quickly and immediately after diagnosis, he had an operation to remove the tumour. Unfortunately, by this stage, doctors discovered the cancer had spread, leaving “seeds” in his brain and around his spine. The operation had left Jack unable to walk or talk.
Despite undergoing gruelling bouts of radiotherapy, where his whole head was encased in a protective mask and bolted face down to a bed twice daily for four and a half weeks, Jack never complained. Instead, from outside the treatment room, his parents and the nurses could hear him still singing!
There followed a period of recovery. The latest update is not so good.
I wrote this writes:
“It is with great sorrow and much sadness to inform you that on Wednesday the 23rd March 2011 Craig and I, were give the devastating news that Jacks cancer had come back. There are lesions over his brain and the cancer cells have spread down his spine (leaving him for the 4th time in his short life unable to walk). Joshua, Jacks brother has been told (we have never kept anything from him) and he is equally devastated. We are very proud of both our sons, and the way they have both dealt with Jacks illness, we have a great network of family and friends, with whom we are eternally grateful for their support and friendship throughout Jacks illness and undoubtedly afterwards”.
Please visit Jack’s homepage and leave a message, Twitter or Facebook spread the word helping us to raise awareness.
The conceptual purpose of the charity is as follows:
1. Raise awareness of Brain Tumours affecting children, the young and the vulnerable, on a National/International scale.
2. Offer some support to the families of children who are recently diagnosed with a Brain Tumour or who find themselves in financial difficulties as a result of their childs diagnosis.
3. Funding local initiatives to support families of children diagnosed with any Cancer, in areas where support facilities may be lacking.
Jack was four years old when he was diagnosed with a brain tumour at the end of October 2009. He was just one of the 450 children in the UK who are diagnosed with a brain tumour every year. Jack’s condition was confirmed quite quickly and immediately after diagnosis, he had an operation to remove the tumour. Unfortunately, by this stage, doctors discovered the cancer had spread, leaving “seeds” in his brain and around his spine. The operation had left Jack unable to walk or talk.
Despite undergoing gruelling bouts of radiotherapy, where his whole head was encased in a protective mask and bolted face down to a bed twice daily for four and a half weeks, Jack never complained. Instead, from outside the treatment room, his parents and the nurses could hear him still singing!
There followed a period of recovery. The latest update is not so good.
I wrote this writes:
“It is with great sorrow and much sadness to inform you that on Wednesday the 23rd March 2011 Craig and I, were give the devastating news that Jacks cancer had come back. There are lesions over his brain and the cancer cells have spread down his spine (leaving him for the 4th time in his short life unable to walk). Joshua, Jacks brother has been told (we have never kept anything from him) and he is equally devastated. We are very proud of both our sons, and the way they have both dealt with Jacks illness, we have a great network of family and friends, with whom we are eternally grateful for their support and friendship throughout Jacks illness and undoubtedly afterwards”.
Please visit Jack’s homepage and leave a message, Twitter or Facebook spread the word helping us to raise awareness.
The conceptual purpose of the charity is as follows:
1. Raise awareness of Brain Tumours affecting children, the young and the vulnerable, on a National/International scale.
2. Offer some support to the families of children who are recently diagnosed with a Brain Tumour or who find themselves in financial difficulties as a result of their childs diagnosis.
3. Funding local initiatives to support families of children diagnosed with any Cancer, in areas where support facilities may be lacking.
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